A Child’s Rare and Undiagnosed Illness: A Mother’s Journey

Today, at 5:00pm, Our co-founder and Director of Advocacy, Heather Long, will be interviewed by Hari Khalsa, The Healthcare Whisperer, live on her radio blog show. Heather will be discussing her journey with her son Cal who passed away in 2006 at five years old to an undiagnosed disease.  Since her son’s death, Heather has…

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UMDF Energy for Life Walkathon

We are excited to join our friends at the United Mitochondrial Disease Foundation of Central Texas in their annual Energy for Life Walkathon! The goal of the UMDF walkathon is to raise awareness as well as support those who are fighting mitochondrial disease in our area. Whether you, someone you love, or someone you know is…

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