Assisting the Undiagnosed and Rare at any age.


U.R. Our Hope’s Summer Fundraiser

IronCactusFundraiser

You’re invited to join us at our Summer Fundraiser and Happy Hour!! This summer’s fundraiser seeks to raise money to continue serving our U.R. Our Hope families.  U.R. Our Hope provides face-to-face support for families living with Undiagnosed and Rare Disorders.  We provide meals to families during times of hospitalization, help facilitate research and medical referrals for families, and provideRead the Rest…


Undiagnosed Documentary

Undiagnosed Documentary

The final trailer for “Undiagnosed: Medical Refugees” is here! Several of our U.R. Our Hope families are featured and will share their stories of being undiagnosed and why a diagnosis is so important.  The film is in it’s final stages, but financial support is needed to make this project a reality.  Please share this project with everyone you know soRead the Rest…


2014 Monthly Meetings

2014 planning is underway! Here is the tentative schedule for this year’s meetings.  Please check back before the next meeting to confirm exact meeting dates and times! We love to have input from our families for meeting places, so if there is somewhere you’d like us to visit, let us know. January 18, 2014 @ 11:30 am - We are meeting at TheRead the Rest…


Holiday Open House and Pot Luck

Join us for a holiday party and pot luck lunch on Sunday, December 8th!  We are hosting an open house event and inviting our current families and anyone interested in learning more about U.R. Our Hope.  This will be a great opportunity to meet other families and learn more about how we can help individuals and families who are onRead the Rest…


Undiagnosed: Medical Refugees

  We have had the great pleasure of meeting the wonderful people behind this soon to be released documentary about the undiagnosed community.  The film seeks to raise awareness and give a face to those with nameless conditions.  Recently, the creators of the film joined our friend, Hari Khalsa, on her BlogTalk radio show, as did our Medical Liaison andRead the Rest…


Reminder: Survey on Parental Uncertainty

We previously posted about a survey on how parents perceive uncertainty when raising a child with a condition for which the cause remains unknown.  The researchers are nearing the end of the study and would like to give everyone one final opportunity to participate.  If you have a few moments, please complete the survey (link below) to contribute to thisRead the Rest…


Press Release: U.R. Our Hope Fundraising Weekend

For immediate release…   Local non-profit, U.R. Our Hope, kicks off fundraising weekend with filming for upcoming documentary about The Undiagnosed   U.R. Our Hope is an Austin non-profit that works with families and individuals with rare and undiagnosed medical disorders. This weekend marks their inaugural fundraising gala which begins with a Patient Advocacy Conference on Saturday, October 19th, 2013Read the Rest…


Thank You to Our Sponsors and Donors!

As our “Evening of Hope” gala approaches, we’d like to remind everyone to please submit their RSVP to vanessa@urourhope.org so we can maintain an accurate guest list.   We’d also like to thank the many companies who have already donated items for our silent auction and the individuals who have given financially. We thank you all for supporting our mission.Read the Rest…


Randalls Good Neighbor Program Now Supports U.R. Our Hope

We received our approval today for the Randalls/Tom Thumb Good Neighbor Program!   If you have a Remarkable Reward Card you can link it to our Charity number which is 13067. Download this form, print and complete! Download: Good Neighbor Form   Once it is filled out it can be returned to your local Randalls’ Courtesy Booth.   For more infoRead the Rest…


Event: An Evening of Hope

We are about a month away from our inaugural fundraising gala! Invites were recently sent out so please keep an eye on your mailbox.  If you did not receive an invitation, but would like to attend, please e-mail vanessa@urourhope.org and she can set you up with all the info you need.     Please note: Your RSVP is of theRead the Rest…


Our mission is to serve individuals with undiagnosed and rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment, and healing.