Assisting the Undiagnosed and Rare at any age.


Undiagnosed Documentary

Undiagnosed Documentary

The final trailer for “Undiagnosed: Medical Refugees” is here! Several of our U.R. Our Hope families are featured and will share their stories of being undiagnosed and why a diagnosis is so important.  The film is in it’s final stages, but financial support is needed to make this project a reality.  Please share this project with everyone you know soRead the Rest…


Fundraiser for Undiagnosed Documentary

Upstairs on Trinity

We had an incredible event last night at Upstairs on Trinity for the Undiagnosed: Medical Refugees Documentary. We thank everyone who came out to support us and made the evening memorable!     We started off the night with an introduction from our Director of Communications, Vanessa Garcia, who shared the mission of U.R. Our Hope and why this eventRead the Rest…


SXSW 2015 Panel Picker Open Now!

SXSWPanelPicker

Voting for the SXSW 2015 Panel Sessions is officially open! We have again submitted our proposal for the Interactive and Edu sessions and need your vote to help us get to SXSW.  Our panels will focus on the diagnostic journey and the tools that are available for individuals on the journey.  We will discuss the healthcare systems and diagnostic criteria,Read the Rest…


Look what August has in store for us!

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            We are so excited for this upcoming month! We have so many great fundraising opportunities and our monthly meeting.     First, we will be meeting up with our Austin families for some water play and a picnic at Bartholomew Splash Pad (5200 Berkman Dr, near 51st/Mueller) on August 16th from 10:00 am toRead the Rest…


U.R. Our Hope’s Summer Fundraiser

IronCactusFundraiser

You’re invited to join us at our Summer Fundraiser and Happy Hour!! This summer’s fundraiser seeks to raise money to continue serving our U.R. Our Hope families.  U.R. Our Hope provides face-to-face support for families living with Undiagnosed and Rare Disorders.  We provide meals to families during times of hospitalization, help facilitate research and medical referrals for families, and provideRead the Rest…


2014 Monthly Meetings

2014 planning is underway! Here is the tentative schedule for this year’s meetings.  Please check back before the next meeting to confirm exact meeting dates and times! We love to have input from our families for meeting places, so if there is somewhere you’d like us to visit, let us know. January 18, 2014 @ 11:30 am – We are meeting at TheRead the Rest…


Holiday Open House and Pot Luck

Join us for a holiday party and pot luck lunch on Sunday, December 8th!  We are hosting an open house event and inviting our current families and anyone interested in learning more about U.R. Our Hope.  This will be a great opportunity to meet other families and learn more about how we can help individuals and families who are onRead the Rest…


Undiagnosed: Medical Refugees

  We have had the great pleasure of meeting the wonderful people behind this soon to be released documentary about the undiagnosed community.  The film seeks to raise awareness and give a face to those with nameless conditions.  Recently, the creators of the film joined our friend, Hari Khalsa, on her BlogTalk radio show, as did our Medical Liaison andRead the Rest…


Reminder: Survey on Parental Uncertainty

We previously posted about a survey on how parents perceive uncertainty when raising a child with a condition for which the cause remains unknown.  The researchers are nearing the end of the study and would like to give everyone one final opportunity to participate.  If you have a few moments, please complete the survey (link below) to contribute to thisRead the Rest…


Press Release: U.R. Our Hope Fundraising Weekend

For immediate release…   Local non-profit, U.R. Our Hope, kicks off fundraising weekend with filming for upcoming documentary about The Undiagnosed   U.R. Our Hope is an Austin non-profit that works with families and individuals with rare and undiagnosed medical disorders. This weekend marks their inaugural fundraising gala which begins with a Patient Advocacy Conference on Saturday, October 19th, 2013Read the Rest…


Our mission is to serve individuals with undiagnosed and rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment, and healing.