Assisting the Undiagnosed and Rare at any age.


Undiagnosed Documentary

Undiagnosed Documentary

The final trailer for “Undiagnosed: Medical Refugees” is here! Several of our U.R. Our Hope families are featured and will share their stories of being undiagnosed and why a diagnosis is so important.  The film is in it’s final stages, but financial support is needed to make this project a reality.  Please share this project with everyone you know soRead the Rest…


Let’s Get Ready to Give RARE!

Give Rare

  Friends and Supporters,   GiveRARE kicks off tomorrow, March 3rd! This is an opportunity for us to engage in a little friendly competition with other RARE disease nonprofits and compete for corporate sponsorship funds.  The more funds we generate for our charity the more corporate sponsors get involved.  It’s a great opportunity to finally build a solid corporate sponsorshipRead the Rest…


CrowdMed: A New Partner in Hope!

CrowdMed Logo

As you all know, here at U.R. Our Hope, we are committed to serving the Undiagnosed and Rare communities in the best capacity possible, and we are not so arrogant to think that we can do it all on our own. We are proud of the connections and partnerships we have created along the way that have helped us better serve theRead the Rest…


January 2015 Family Meeting

JanMtg

January Family Meeting Saturday, January 17, 2015 at 11:30 am  BJ’s Brewhouse & Restaurant (Arbor Walk Location) 10515 North Mopac Expressway Austin, TX 78759   Join us for our first meeting of 2015!! We will be planning our future meetings and brainstorming ideas for Rare Disease Day in February. We are starting to work on more fundraising throughout the year toRead the Rest…


2014 Holiday Open House

2014 Holiday Open House

Join us for this year’s Holiday Open House and Pot Luck Dinner! Sunday, December 14, 2014 at the McDowell Residence from 1:00 pm – 4:00 pm at 1901 Canonero Dr Austin 78746. There will be food, games, and fun for the whole family! We ask that each family bring a side or dessert dish to share. We will also haveRead the Rest…


You’re Invited: 2nd Annual Evening of Hope Gala, Sponsored by Whole Foods

GalaHeader

            Join us for our 2nd Annual Evening of Hope Gala at Russell’s Bistro on Saturday, December 6, 2014!   We are so excited to host our 2nd Annual fundraising gala! The evening will be full of fun, food, dancing and an incredible silent auction. We hope you will join us to celebrate HOPE! 2ndRead the Rest…


Fundraiser for Undiagnosed Documentary

Upstairs on Trinity

We had an incredible event last night at Upstairs on Trinity for the Undiagnosed: Medical Refugees Documentary. We thank everyone who came out to support us and made the evening memorable!     We started off the night with an introduction from our Director of Communications, Vanessa Garcia, who shared the mission of U.R. Our Hope and why this eventRead the Rest…


SXSW 2015 Panel Picker Open Now!

SXSWPanelPicker

Voting for the SXSW 2015 Panel Sessions is officially open! We have again submitted our proposal for the Interactive and Edu sessions and need your vote to help us get to SXSW.  Our panels will focus on the diagnostic journey and the tools that are available for individuals on the journey.  We will discuss the healthcare systems and diagnostic criteria,Read the Rest…


Look what August has in store for us!

10402088_10152282311576586_6161643475096698898_n

            We are so excited for this upcoming month! We have so many great fundraising opportunities and our monthly meeting.     First, we will be meeting up with our Austin families for some water play and a picnic at Bartholomew Splash Pad (5200 Berkman Dr, near 51st/Mueller) on August 16th from 10:00 am toRead the Rest…


U.R. Our Hope’s Summer Fundraiser

IronCactusFundraiser

You’re invited to join us at our Summer Fundraiser and Happy Hour!! This summer’s fundraiser seeks to raise money to continue serving our U.R. Our Hope families.  U.R. Our Hope provides face-to-face support for families living with Undiagnosed and Rare Disorders.  We provide meals to families during times of hospitalization, help facilitate research and medical referrals for families, and provideRead the Rest…


Our mission is to serve individuals with undiagnosed and rare disorders through education, advocacy, and support in order to bring hope through knowledge, empowerment, and healing.